Hospital – The Bad and The Good – med update (by sarah)

After 3 yrs I am being discharged from the Head Injury Unit for Self-Care i.e. my quality of life is good and I am showing a positive trend in improvement and just need to keep on keeping on at my own pace - I am not back to 100% functionality but still have a good chance of reaching it! Neurology stuff for the seizure thingies needs to continue for now but this is still epic news - I was discharged from the physio a while back which ironically makes my time and fatigue management a lot easier as the hospital trips are the biggest drain!

Seizure stuff is a bit of a pain in the backside still - I haven't had anything major since the miscarriage but.... still getting muscle spasms, head pain/rushing noise - it's kind of both and I have no idea how to describe it but when it's happening my muscles are twitching worse than when the tens machine used to accidentally get switched up high! I also get colour drain in one eye and wet myself etc... I don't remember them but managed to have one when Al was laying next to me - it was mild but enough to observe the symptoms properly. My jaw also clamps down and I often bit the inside of my mouth or tongue.

Supermarkets... I still struggle with these damn shops - it's like they are designed to be maximum overload or something - but I can manage a half hour or so trip now with no problems - mainly I avoid peak times and being with the kids when shopping.

I am still having to have quiet breaks in order to get through the day - I can now skip rests but not for more than two days at a time and even then that is pushing it... but my speech is so much improved when I first went to the clinic it was still pretty slurry all the time and then it would get progressively worse the tireder I got - yesterday on 2 hrs sleep I managed an entire session being articulate and even laughing at the on going issues with face blindness (made a few booboos at the poetry festival with recognising or rather not recognising people!).

Mobility is in a little dip at the moment but that is not unusual - and is due to having had a little fall/slip whilst away on holiday and then walking all the ruins and castles and follies we could find regardless. The walking stick comes and goes and also is worse when I've had a seizure thingy - because it is something I have to use for pelvic pain, fatigue and sometimes just general managing to stand upright and not just tip straight over! Most of the time I don't have to use it at all! The last factor is the only one that the head injury has added the other two pre-date it!

The NHS have been fab with this but... getting head injuries picked up and dealt with is really hard, most people end up fending for themselves and here's the thing - if I hadn't had my family around to take care of me I am not sure what would have happened too me - I see some of our local homeless people and think about what I was like and... I still struggle with money and finding my way home - it would have been very easy for me and people like me to have ended up on the streets, in a very vulnerable position - but I have my family and they have made sure I was as safe as could be - I'm pretty sure others have not been so lucky, and I don't think there are the provisions in place to help them. I was being regularly mistaken for being drunk or drugged up and that kind of makes you invisible even within the A&E departments - something which I fear will get worse as funding cuts bite.

And back to that whole truma thing - hospitals.... I find them incredibly hard places to go into - they have saved my life - they have saved my babies and allowed them to be born, there has been care and compassion - there have also been sharp needles and knives, and pain and death and blood.. lots and lots of blood - most of the time my own but not always. Hospitals are places were I have been detained, places I couldn't leave (though I assume if I'd insisted I could have left), places where I have been strapped to beds or held down so that pipes and tubes could lit be rammed into me - emergency stuff is like this and for me I have sometimes been way more aware but unable to act on things. The idea that I might go in and not come out and that this will be surrounded by pain.... is always there - hovering with the smell of cleaning fluids, over cooked food and sickness that pervades.

Little side note here - the art works that are scattered around the hospitals became incredibly important to me at such times - sometimes they are the only things I truly remember from a hospital stay.

I had two hours sleep before the appointment because I had forgotten about it and then checked my calendar and there was the appointment large and bold and... in the block where I lost the baby and every time I tried to sleep all the stuff from before rushed back, for 18 months after I had Jean I had a reoccurring dream about being held down and crucified to keep her alive - I described it too Al and he was like, "that's a memory of them taking your deep arterial blood when you went into A&E" I don't really remember that happening, I do remember blood squirting up the cubical curtains and that it was my blood and I was pregnant but I can't recall which A&E trip it was but I know there was an old man screaming. Even things like my blood transfusion at 4 yrs old decides to come and haunt me on such nights.

If I know about the appointment I can prepare myself and sort my thoughts and write or draw the stuff away so I can sleep but if that doesn't happen we get what I had this time - dreams of machines where you feel like you are buried alive.

I gave up on sleep at 1:30 am and wondered down stairs to watch documentaries about Japan - there I marvelled about little old ladies that catch venomous water snakes that are 10x worse than rattle snakes - with their bare hands, wading into dark water caves in their flip flops - they reminded me of my nans - they way they chatted and got on with things etc... though obv. my nans only had adders and badgers to contend with but I do recall how they would chatter to each other! I watched deer being bowed too and bowing back at a temple and I rode my exercise bike with it's special seat to help when my pelvis is bad and managed to get myself physically exhausted enough to sleep from 4:30 until the 6 am school run start.

One of the dangers about feeling like this is that I don't want to go to the hospitals and clinics and drs so I avoid them as much as I can and sometimes my eagerness to be discharged is not because I am better but purely because it means I won't have to go to the hospital again so soon. Like wise I tend to put off going to the drs until something is really wrong.

So yeah - there we go - good thing head injury stuff is getting there and I know how to manage various things including the truma but things.... NHS is struggling and I am incredibly lucky to have physical stuff and not a mental health issue where the waiting lists and emergency provisions have all but crumbled.

Empty Handed (by sarah)

TMI and Miscarraige trigger warning.

Note: post was written over several days and is not completely chronological in order - started on Thursday 9th Nov.

Yesterday Morning the NHS gynae team at Gloucester Royal Hospital saved my life - it was impossible to save my kinder surprise, though the sorrow of which is I hadn't known I was pregnant for very long before the problems started. It's amazing how joy can evaporate leaving a pit of despair that seems bottomless.

We already knew the baby was probably dead but there was still some hope and we were awaiting the scan. I don't know if I had a temperature with the cough or whether the damage was actually done at the end of September when I did have a fevery chest infection but did not know I was pregnant. That in same ways would fit too but then it could be my irregular periods or the endometriosis or maybe incompitable blood groups. Or maybe there was just something wrong with it in the first place. We can't really know.

Everything I can control and do right I do do right - no smoking, no drinking, eating healthily and exercise. And though I know people stressed that I was continuing to run workshops and act and go on field trips and hike even after knowing I was pregnant - the Drs assure me that a healthy pregnancy would be fine with those things - something else was wrong - something out of my control.

This leaves me with a hatred; I kind of had this hate anyway - I know they are suffering in their own ways but the rage I had with mothers who smoke and drink during known pregnancies has intensified. This has been there since I was being wheeled passed such a person whilst pregnant with Jean. To see them there on tottering heels with a cig in one hand and a bottle of booze in the other sporting the bump between boob tube and mini skirt whilst I had followed all the advice and was crippled and unsure whether I'd ever see my baby... after the scan on Sunday I found it hard to even look at one of my best friends because of this, she'd been unable to give up smoking and was in my house at my request and I found it so hard talking to her and I don't want to feel this rage.

I was continuing to do all the things because I thought remaining active was the best way to prevent the separated pelvis from becoming too bad. As soon as problems presented themselves I began to cancel the more physically demanding stuff. Ironically this means I have just stepped back from some amazing opportunities to try and save a baby that I have now lost.

Yesterday morning I was in a lot of pain, I'd started loosing clots but it wasn't bad enough to be seen again. I sat and did some colouring in and tried to sort out ballet classes for Mary and do adminy things. I had what I term a "period poo" and went and moaned about this to Al as that was all I needed on top of everything and I was worried I might have now picked up a stomach bug.

Then we had lunch and I sat and sorted the craft supplies for the workshop with the Scouts I was supposed to be running the next day - I was sorting stickers, pompoms and goggle eyes into various tubs. I wasn't lifting crates and wasn't even sure at this point whether I was physically going or sending Al with instruction sheets for the various things I'd gotten ready.

I felt sick and saw my bleeding had increased slightly so I went to see Al who said we'd phone the hospital again after his next meeting which was in 15 mins. I came back in and changed my pad but before I could sit down I felt a rush of blood. And went back to the bathroom - I'd drenched the pad and it was running down my legs. I phoned Al and said we need to phone now and go to the hospital.

I changed pad again and then again whilst he was phoning - the emergency number we'd been given told us it was daytime so to phone and leave a message with the early pregnancy unit and they would phone back. This is what we did but I'd had to change my pad again and knew this was bad from previous bleeding issues after having had Mary so we bundled me into the car and went to A&E. On the walk from the car park to the department I felt something come out of me, I felt like I'd given birth to something, I knew the pregnancy was smaller - much smaller than it should have been so I flipped out screaming "somethings come out" I thought my womb had prolapsed with the accompanying pain and the size of what came out.

At the desk whilst Al checked me in all I could do was cling to the side and whimper due to the contractions I was having - these were not full on all stomach like I had during Jean's birth but they were worse than the womb flush cramps I had after Mary. The whole thing was somewhere pain wise between the births of my two girls, except I knew there would be no little baby to take home.

They put me in a wheel chair and put me in the waiting area and we waited. At some point there was another pad change whilst being seen by a nurse - Al had to wheel me into the loos and help me. I was loosing handfuls of black/brown jelly clots like I did after I had Jean except these were much bigger.

Mainly with miscarriages nature knows how to take care of things, I could still feel the thing filling my vagina and I was still petrified about what it was. Selfishly I was now worried about whether this baby was going to take my womb with it, I didn't think my life was in danger at that point - I know my body can take far more of a beating than this before things got bad. The pain was different from the suspected ectopic I had which was a searing pain down my left hand side followed by cramps of a bad period variety (I have bad periods so probably a very bad period to others).

I was taken to a side room off of A&E which was busy with stressed looking Drs in it - I think the wait times and capacities are worse than when we first moved here - I believe there has been at least one A&E closed in the area in that time and this makes me furious as I watch the paramedics having to fill the gaps with patients whilst waiting for the Drs - everyone was maxed out.

By the time the Dr came to see me I had soaked through my pad, uber fluffy pyjamas and made a considerable mess of the wheel chair, my legs, socks, shoes and even the floor.

Up on the trolly the nurse helped me remove the sodden mess and something fell out, I freaked again trying to push myself away from the lump that to me did not look like a jelly clot - I had forgotten about placentas and things, I knew it was too big for the baby/fetus/blob and again that fear that it was my womb. I was in quite a lot of pain as well at the time. They assured me it was ok and placed it in a bowl for the Dr etc... to look at.

The Dr examined me, including speculums and dragging material out, he like every other Dr had trouble finding my pesky cervix; it likes to hide for my smear tests too and I have to do some fun gymnastics for them to get at it. It was decided I needed an injection to increase my blood pressure and help my body push it all through. Kind of inducing a micro labour from my understanding.

It made me feel sick but then I was feeling like I might vom anyway.

They informed me it was a miscarriage - I have a horrible feeling I actually said "duh yeah" to the Dr.

The nurse was literally scooping up handfuls of red/black gunk and shoving them into a bag, it was hanging down in boulbous strings like silly putty or play slime - a bit like some horrible monster from a horror movie. I found myself stressing out that they were going to put the baby in the bin even though I knew it was minute and possibly not there at all and already dead.

Alaric has been struggling to eat since.

He showed me stuff from his workshop book to help distract me and keep me conscious - a large old book with black binding and little embosses logo - the nurse thought he was reading the bible to me. I kept crying randomly.

I thought the Dr said his name was god - I think because I'd been reading up on Islamic stuff for my novel I heard him say Allah - I think he said Ali or something. Certainly someone was called Ali because Alaric responds to that name and kept turning around when it was called).

There was a lot of faff about chaperones and covering my dignity, which I just wanted to scream was unnecessary but understood was really there to protect the Drs as well as patients. Also I don't think I really had the energy to scream at all about anything.

The wheel chair was cleaned up (by Alaric who was in his stressed being uber helpful mode) and I was taken up to a ward to a room of my own with bathroom. As they wheeled my chair in I started to cry - it looked like the sort of room I'd had when I had Mary - the sort of room that should have one of those little hospital cots in - I was going through all this and there would be no baby to hold.

The poor girls who had to put up curtains in the room where trying to be sensitive and give me space or someone to talk to, in the end they only hung one curtain and came back later to do the bins.

I lost more clots and was wearing huge pads and hospital disposable bloomers (which are see through) by this point. No trousers, just blankets to cover me up - I told Alaric I thought it was the end of my Eeyore pyjamas.

I needed the loo - I made a huge mess and called the nurse as I physically couldn't clean it up and Alaric had had to leave to get the kids all sorted out - it was night time I'd got to the hospital at 2 pm. I don't remember all of it.

Nurse told me we had to keep all the clots and discharge etc... so put a stack of pans next to the toilet and I worried that I'd mucked things up by flushing the clots away.

Issue - I needed to pass all the bits of sac, baby etc... in order to stop bleeding and producing the clots of which there was a lot. And they needed to check all of it to see if I'd passed the "products".

Alaric thinks the actual baby bit would have been in the first chunk I lost - it looked more solid than anything else. He carried it up the stairs - this is important to him - since we'd found out I was pregnant he'd been talking to it, even when we weren't sure if it was alive or dead or a zombie baby he spoke to it and told it it was alive and to hold on and how much we loved it.

He told me and the Dr that he thought our little Rice Grain had other things to do and that he wished it well.

Up in the ward room they came to take blood and found my veins hiding due to fluid loss so then came the fun bit of finding a vein to put a cannula in - the first attempt at putting it in failed - I'd wanted it in my left hand so that I could still bend my arm (I've been cannula-ed up before, I know how it goes). It was a no go and has left a lovely bruise - it was a pink robot butterfly - for some reason I felt the need to explain to the Dr that cannulas were robot butterflies, something which harks back to me being in hospital as a four year old.

She said my right hand looked a no go too - apparently I'm too delicate ie my hands are too boney and it is painful if the vein is right up against a bone - also my veins kept running away from the needle - though I think that was later on. It ended up in the crook of my right arm. More bloods where taken and a fluid sack attached to a drip. I was damn thirsty but they were already considering giving me an op so I was Nil by Mouth.

I got pain killers and then morphine, I would try not to writhe on the bed or call out in pain. Everything I passed had to be kept so they could see what products I'd passed. I felt like I was leaving a horrible mess for them each time but none as bad as the first time and the amount of clots was reducing.

They asked me on a scale of 1 to 10 where I was with pain - I said initially 5, then it went up to 7 but my pain scale I think is a bit skewed - for me 8 is unable to talk, 9 is can't open eyes but can understand what is being said and 10 is there is nothing but the pain in my existence. When the Dr came to try and manually clear me out (this was another attempt after the initial one in A&E) I reached an 8 - my damn cervix, I felt like my entire insides where being pulled out when she grabbed it with the tong things. I thought I was going to pass out or throw up as well.

I got morphine to take at this stage.

I got more fluids, I got nurses popping in for chats - I cried every time I was on my own - I read my book on terrorism - it was a Thriller easy read with both Christian and Muslim extremists as the bad guys and a brit muslim as the hero along with a US author. It was a good plot line but read like a point horror - just what I needed.

Alaric came back at some point and gave me PJ and clean underwear and the dussy cuddly toy which I had been snugging at home when in pain. The nurses loved the dussy, so did the Drs.

He'd packed my pregnancy PJs; I couldn't help but point this out, i.e. the ones my mum made me when I was having Jean and that are really thin cotton so only tend to get worn when I go into hospital. They have paddington bear on them. He's tried to get me old pjs and bought me a pair of his and his pants to wear as well so I wouldn't ruin any of my wonder women or star wars knickers etc...

I slept a bit, the pains seemed to be easing off and the clots got less and less.

They let me sip water until midnight when I had to once more be nil by mouth just incase.

I was awoken for morning obs and it all seemed fine. I felt a lot better, the Dr was sorting out a scan for me and we were hopeful that I'd avoided needing an op. I felt well enough to attempt changing into non blood stained PJ bottoms... I did this and went a loo with the idea that I could perhaps wash myself a bit. But were as the clots had been getting smaller and smaller to just little flecks during the night I now "gave birth" to several fist sized clumps - and they were not my fist size, they were quite sizeable wrestler hand size clumps. I frowned at them and walked back to the bed having noticed that my canula was letting blood up my fluids tube and I was damn thirsty, so thirsty it was all that began to occupy my mind, I felt sick - I needed to drink.

I pressed the buzzer to get my fluid bag changed and to tell them about the clots. I sat on the edge of the bed unable to get back into it - I suddenly felt weird. When the nurse came I explained and mentioned the feeling weird and suddenly sweating hot as a little side thing.

I had ringing in my ears but I often have ringing tinnitus. The world was greying. She got me in bed laid it flat, grabbed the obs kit to check my blood pressure. It was low, she checked the other arm and it was even lower - I know the second reading had a 30 in it.

Suddenly the room was full of Drs and nurses, extra canulars where put in - these were green I think, they could take faster flows, nurses where literally squeezing bags of fluid into me, they made me feel cold. I told them I thought I was going into shock but I couldn't understand their reply, I started to shiver and cough. An oxygen mask appeared. and I noticed my nails were blue tinged. I thought "that's not good" I thought "I'm not going to get to write poetry stories for this baby," then I thought "stop that! little Mary needs you, you have stories to finish for her and Jeany," the world was a swirl.

They were trying to explain things, they looked inside again, I wasn't opening up properly to let everything out - just like with Jean's labour. I thought "this is a lot of medical stuff and pain for no baby" they kept trying to draw me out with conversation - the Dussy was important for this.

It was less painful than having Jean, more painful than having Mary. I kept apologising for everything - I'm not sure why I do this - there was a nasty philosopher who said that if you truly want to see who someone is then you hang them over a cliff or make them confront their death (or something like that) and only then do you truly see who they are. Every time I get close to that cliff I start worrying I'm being a nuisance and apologising and trying to clean things up and be helpful - I am not sure what that really says about who I really am.

Alaric uses this to gauge how ill I actually am - a gritted teeth fine is much better though still not good but a sorry is a bad sign and an Ok is probably the worst.

Once I was more with it I could see there were 2 drs and 4 nurses all in my little room, "nothing like a bit of excitement first thing in the morning!" was one phrase that made me smile.

But that was it I was going for the op. I was now being fed fluid through pressure cuffs?

I couldn't reach my next book to read - The Book of Dust and with the canulas and fatigue I couldn't have held it up even if someone had passed it to me so it sat there with the Dussy on it and I thought of going back to South Africa and seeing the whales properly, I saw a whale give birth but I still haven't seen an orca and Lynn had told me about them at sunset and how their white turns pink as they jump out of the waves - I want to see that.

I felt a pang of guilt as I lay waiting for the op. I wanted this to all be over, but for it to be over I had to get rid of the last remnant of my baby. It was like I was wishing it away.

A lovely nurse came and changed me, managing to thread my t-shirt around all the pipes and canulars - the blood pressure tube was on my leg - I'm not sure how it got there but she explained it was so it didn't hamper the fluids going into my arms. I think I panically told the Drs about my blood group - don't give me O positive it makes me ill, I know my blood looks like O positive but I'm allergic to it!

Apparently I was down as O negative anyway.

I'm not sure I was making a lot of sense - but I know it was potentially important.

I had to do swabs for various super bugs - I think I may have done this twice at various stages. I panicked that I hadn't told them I'd had contact with MSRA before they started doing stuff because I know it can be a problem.

I explained about my c-section scar and then about cleaning mum's cancer wounds - no idea if it was relevant. Again not sure really how coherent I was.

I got stressed that I was leaving blood all over the hospital and mucking up all the white sheets. I couldn't go to the loo myself but the amount of fluids they had pumped into me meant I needed the loo a lot - I had to call for bed pans. I don't like weeing in bedpans, I never thought I'd want a catheter fitted but I found myself wistfully thinking about them.

They couldn't get hold of Alaric to tell him I was having the op - it was school run time and he'd left his phone at home because he was stressed. The headmistress apparently stopped him to ask if he was ok which quite frankly he is not. For me I was losing/had lost the baby, for him it was the baby loss and a very ill wife.

I knew he should know I was going into theatre - I got the nurse to get my phone and texted him saying I was going to theatre - I wanted to text that I loved him but knew he'd panic so didn't. When none of us had heard back from him and I was being whisked away to theatre I regretted not sending the "I love you" and couldn't remember what the last things where I'd said to him or the kids and I just wanted to get home for snugs.

I had forms to sign and a million questions to answer and both ends of my bed being wheeled around the hospital. The anaesthetic drs where really nice and in the end the bit I'd most been dreading and didn't want to happen - the op. was the least traumatic bit of the whole experience. They injected stuff into my canula, explained I'd have a breathing tube put in and gave me oxygen and talked gently to me until I went to sleep.

Part of me always worries I won't wake up - I think that is because of the almost dying during the op. as a four year old and waking up days later - that missing time is always there when I have hospital stuff - I can't help it.

There was kites and clouds on the ceiling, I held onto the fact that I have a kite picture I need to ink and turn into a colouring sheet for the girls. And drifted off and woke up and it was done - I had a bit of a sore throat and a blocked nose.

I was allowed to drink again and when I got back to the ward I was even allowed food. I thought I'd wolf it down but I didn't - Alaric turned up as I was being settled back in the room with the food. He'd gotten the message and phoned the hospital and they'd told him he didn't have to wait until visiting time (3-4:30 or something like that).

I didn't have a clue what meal it was, as in was it lunch? Dinner? It turned out to be lunch, I barely managed a 3rd of it. But I did drink the soup and my cup of tea. I was still woozy so was still bed panning it. Alaric thought I was a def. staying in for another night so went off to get the kids for a visit.

But my bloods had come back fine and I was starting to feel a lot better the Dr asked me if I wanted to go home - I was now feeling narky and fed up with being in the room - I knew Al was getting pizza for dinner - I wanted pizza and a film with my family.

I was using the loo again and there was little blood and only minute specs of clots etc... I drank all the water, I wanted to rip the canulas out. They came and took them out for me and I got myself dressed though it was a confused getting dressed and I think I put back on dirty cloths - certainly Alaric helped me rechange when I got home.

Al turned up as they served me dinner - you could tell I was feeling better as I was cross and snappy. I struggled my way through most of the main course and left the soup, roll and stashed the pudding for Jeany, much to Alaric's bemusement.

We were waiting to be discharged, first clanger - the Dr who'd spoken with me earlier said I'd have pain relief to take home - by this point I hadn't had anything since the op. and was feeling it - I asked for pain relief but it didn't appear I might not have been allowed anymore and then the discharge nurse said that I couldn't take and pain relief home and that I should just take paracetamol.

"oh ok" I said whilst thinking "bloody hell paracetamol isn't going to touch this".

Second clanger which I found harder to deal with was to do with how the remains/gunk was going to be dealt with - at some point the previous day - I can't remember when exactly a nurse had sat down and gone through things with me so I'd signed a form saying I would like the remains to be cremated and scattered in the garden in Cheltenham but I knew there was a second form about being informed when it happens.

Now somehow I assumed this meant there was a little service we could go to. The poor nurse realised that this is what I thought and had to tell me that we couldn't attend it but that a chaplain would phone to say when it had happened. I was crushed by this - unbelievably crushed - more crushed than I would of thought possible.

Also I wanted to know what had caused it - the suspected ectopic between the girls had been so much easier (I was and am still really upset about it - there is a gap in my children that shouldn't be there) - but it had grown in the wrong place, end of story. But this one - this had felt like a nice pregnancy - the best and easiest I'd had, there wasn't much morning sickness, my breast hurt sure but that was nothing. It had suddenly all been blown out of the water.

The answer is they don't know - the risk factors I tick are illness - I was ill at the end of September, ill enough to not go to work I really wanted to go to. Had that done the damage? Was that why the baby was so small? Had it stopped growing properly at that point? Or was it the suddenly coming down hard with it again on the Thursday - I was ill enough that someone who knew me randomly stopped me in the street to ask if I wanted a lift home because I looked so sick. I just started sneezing and coughing hard, it was like a sledgehammer of flu. Alaric thinks this is what did it - he thinks that it must have been this because of how correlated it was with the bleeding. Cough/bleed/cough/bleed/cough/bleed. I'm sure which scenario is better. When I say cough I don't mean a little tickle - the cough was deep an hard and continuous - I could hardly talk to the Dr on Friday and there was nothing they could give me for it.

Or is it my shonky womb with it's erratic bleeding or my stupid weird can't make up it's mind blood group? I don't drink or smoke and I try and eat healthy and exercise and so on. What went wrong? They said it wont have been the work I was doing - that is fine for a healthy pregnancy - so am left wondering what happened.

Left feeling like my body just randomly poisoned our baby, or that I did something wrong but I can't really find what I should have done differently without it causing other problems like making the separated pelvis worse.

I cried in front of the girls when I got home - I couldn't help it, Jean had saved a Mrs Tiddiwinkles 50p for me and Mary dumped a confused looking cat into my lap but neither of them wanted to really look at me - they had Minecraft. Alaric got annoyed with them - they both sneaked in for cuddles a bit later on and then argued about who got to snug at me. I was still having regular waves of pain which I couldn't hide from them.

Alaric made me a bed up in the spare room so I'd be more comfy, he put the dussy and my crotchet octopus on the pillow and made sure there was a stack of books and things. The spare room has the cot in it - it is currently a children's sofa covered in cuddly toys. It burned me and I cried until I slept. When I woke up I had forgotten and then I saw the flapping dressing on my arm and the streak of blood, just one little line ending in a spot where a needle had gone in. Tears without sobs came and that was how Jean found me when she came to see me before school.

I feel I am failing them as well - our family almost grew but now I am just the cause of pain and extra work load for everyone.

This is the Facebook update I composed - I didn't really want to post anything on there are was actually more open on twitter but people were worried and needed to know - I tried to text or Al phoned and emailed people before hand but as always we missed people accidentaly.

I'm out of hospital - I once again have the NHS to thank for my life - emotionally I am not good and physically been through the mill and may not be over yet. I am hiding at home - for those who want to know more and don't already know I am writing something but it is mainly for me and will be shared when it is shared which might be never. But me and Alaric Blagrave Snell-Pym have had an emotional roller coaster the last few weeks going though surprise, fear, joy, horror, hope and now despair as we left hospital empty handed. I will be hiding for the next week recovering.

Grain of Rice (by sarah)

Written Monday the 6th but was not put live because there were people we felt we should tell first before they saw it anyway else and because we weren't really sure we wanted people to know at this stage. I'd also been writing poetry since Friday 3rd which I will see about putting in a blog post.

Grain of Rice

So I found out I was pregnant and as also happens... I find out - I start bleeding. Really very lightly, so light I wasn't sure if I was seeing things.

But I was coughing... bark bark bark, coughing right down deep in the core of me so that my c-section scar hurt, so that I'd pee myself. I've had a cough all the way through since September but mostly it's just been an annoying tickle but it was a chest infection in September and it suddenly hit me hard whilst I was in town. Fortunately one of the people I'd been working with at Frightmare spotted me and thought I looked unwell and gave me a lift home.

I'd sneezed a couple of times and the coughing hadn't yet arisen to it's full intensity it was still just a cough - the main issue was that I felt suddenly like all the life had gone out of me and my pelvis had clicked and walking was once again damn painful. My separated pelvis had never fully gone away so a cracking pelvis wasn't that strange.

I got home and the cough got worse and worse and that night I was struggling, it hurt my pelvis and scar with it rattling lot of coughing fits. The chest infection seemed to be back I went to bed early but the blood appeared so so light - we phoned the Drs...

I could barely talk for coughing - I was steeped in misery at the thought of the cough I developed at the beginning of Jean's pregnancy and what that had meant for me. The nightmare of blood clots and oxygen monitors and samples of arterial blood being taken.

The blood quickly snatched my attention as the new fear was that I was losing the baby - but I had spotting with both Jean and Mary - I had full blown periods with Mary's pregnancy but I also had a suspected ectopic and years of delayed periods followed by bad periods where I dared not take a pregnancy test. There was supposed to be a two year gap between Jean and Mary - I think that says it all really.

So I found out I was pregnant and then there was blood - like every other time I've done a pregnancy test - seriously what is it with that?

Currently the Drs can't do anything for the cough - it has subsided a lot. Then it was the waiting game - I had to wait until Sunday morning to get my scan to check. The baby was smaller than expected, with no obvious heart beat. Saturday I lost gunk, slime and old blood.

I'd been feeling cold for days, so cold Jean had lent me her hoody - this was before the blood appeared - I wonder was I already bleeding inside.

I'd been having a bath Saturday evening when the gunk arrived, I had a slight cramp, Mary barged in to go to the toilet - she's six and always needs the loo if I want a nice relaxing bath. She said, "Mummy you've pooed in the bath" I looked and there was gunk and I swallowed the horror and coughed and thought "oh my god I've just miscarried in front of my six year old".

Sunday was the halloween and fireworks party I'd promised the girls; I didn't really want to cancel it - I thought I'd lost the baby I thought I might have to have the DnC thingy again where they wash your womb. My friend came over uber early with her little baby to baby sit the girls and let anyone in who arrived at 10 for the party if we weren't back.

I told people I wouldn't be making cakes and the floor would likely not be hoovered. Alaric's friend hoovered for me and he made us all nice nutritional food to sustain us and Alaric got to talk to them and remain sane.

Sunday morning was more wee testing and the scan - I'd already convinced myself that the baby wouldn't be there. Initially all they could see was the sac and the bleeding which was on another part of the womb. So I had to go and wee for an internal scan - on the loo I lost a solid lump about 2 cm with little white bumps on them.

So I was surprised when they said there was something in the sac... a very small pregnancy - the size of a grain of rice. But there was no heart beat but it is small it maybe a pregnancy that has stopped growing, it maybe just a younger pregnancy and it may or may not be still alive. It may just be too small for the heart beat to show.

I wonder about the bleeding spot and the gunk I've lost, Alaric is convinced it is the same as happened early on with Jean where it appears we lost a twin. He is hopeful - I am not - I have to wait 10 or so days to go back and see if the pregnancy is growing, whether the baby is still alive.

This means I am sitting here not knowing whether the cramps and bleeding are turning into a full miscarriage, or whether there is a little baby developing or whether I have a dead baby sitting there or worse combo a zombie baby that is neither properly dead or alive but has the potential to poison me with its decomposition.

Some of the gunk was stinky, mostly it's been fresh blood I've lost. I am in pain, physical pain. I keep swinging from desolation to little peeks of hopes and dreams about finishing my baby discworld toys I've been sewing. I am getting angry at friends who have babies but didn't give up smoking and stuff - I get like this - I feel a rage and hate and a ITS ALL UNFAIR as I watch others do things "wrong" whilst I do everything the Drs say and struggle so very much.

This is not fair on my friends who I know have their own struggles.

I opted to see this one even though it may well not be viable - as Al said the ones that are nebulous between Jean and Mary we struggle with because we don't know how to remember them or how many actuals there were but this one we can remember - he wrote all the stats down for it so we'd have at least that.

Miscarriage and still births are often not talked about or seen as a thing of shame and this is unhelpful in the healing and to be honest the medical research around it all. I am fortunate that mine have all been early on issues but it still hurts like hell and I just remember all that pain between Jean and Mary when I didn't even know how to talk about it or what I was supposed to feel and I don't think I'd actually processed all of that until now.

As you can imagine I am a bit of an emotional wreck, I keep apologising to Alaric which I think he's starting to find frustrating - he wont let me do any house work or anything which I'm finding frustrating but I understand - plus when I have sneaked in a bit I just end up coughing up my lungs again. And yes I fear blood clots like I had with Jean.

Again the issue that the records from Jean's pregnancy are all missing much to the Drs horror >:(

So yeah unhappy Snell-Pym's and yes the kids know - considering they knew/suspected I was pregnant before I did and they can see when I'm not well it isn't really fair to keep stuff from them. Death is part of life, grieving is something that kids are often denied and I don't think that is healthy - a new baby or the lack of affects them as well as us.

Just sitting here hoping it's not a zombie baby and fearing its a gone baby. Oh and one last thing - yes I am referring to it as a baby but in reality it is a bundle of cells at this stage and things around pregnancies are always hard times for the parents weather they are wanted, not wanted, surprises or forced -so if I catch anyone using this as an anti-abortion thing I will go spare - a woman's body is her own. Plus I'm sure that's the only way to safely deal with zombie babies :'(

Me and Mary and Park Run (by sarah)

A few years ago now me and Alaric were at a tech and society conference/festival thing - can't really remember what it was and we came across the brand new idea of a Park Run - there was only the one of them (I think poss two) at the time. It sounded like a fantastic idea but alas none was near enough to us.

I remember wondering if I would ever be fit enough as I was on some form of walking aid at the time (can't remember if it was crutches or walking stick). Anyway they appeared in our local area and Al's been doing them on and off and then Jean and then today me and Mary went along - we did not finish but we did a whole lap of run walk run before Mary wanted to lay down. Then we were going to walk a second lap but she decided she was going to run a bit more - so we run walked half a lap before she spotted the playground and in we went to play until Al and Jean came to find us.

Jean was a bit glum as she wants her t-shirt and because she stayed with us for the first lap she also didn't finish though she did do two full laps but she refused to leave us noobs to it! Al thinks he may have a new PB. Parkruns are 5k - this was the first non-running around the block I've done since the half marathon in my teens! Literally 20 yrs ago almost perfectly I think!

I was very worried how my pelvis was going to be and how my balance and things were going to be - there was a slight issue with my gaze instability at the beginning because runners cloths are all patterned and bright and moving around but I know better how to cope with that thanks to the head injury team 🙂

Yeah we didn't finished but me and Mary can build up and there was actual tails on tail runners! Big thankyou to all the Kingsway parkrun, Gloucester.

Also I am now not getting restaurant pizza until I get round all three laps!

Food Frustrations (by sarah)

Mr Alaric made pasta bake for our dinner this morning, this is because I'm still burning stuff when I cook unsupervised and he now doesn't get in from his new job until Mary's bedtime - so we are trying him pre-cooking and me bunging it the oven for half an hr to feed the kids on time.

Also we are trying to do him packed lunches to save money as there are quiet a few DIY projects that need completing around the house.

This is brilliant and wonderful of him... but he did almost get himself skinned alive over the weekend when he suggested I have a snack because I was hungry and at 2:30 was saying I needed to eat and not wait for elaborate cooking. Issue, I normally have my lunch at 12 at the latest, I put on some weight over Christmas (I am now 10 and a 1/4 stone BOOOOOOOO and flapping when I run), this mucks up my sugar levels and my pelvis so there is no choice the weight is going. Meaning I am HUNGRY. I am always hungry unless I have 1600-1800 cals a day unfortunately I was quiet sedenatory over Nov with colds and chest infections and what not and then went straight into Christmas and somehow failed to do my walks and stuff.

Because I know I get hangry and fainty (blood sugar drops etc...) I'm not cutting straight down to 1400 cals but am taking Jan at 1400-1600 cals with the hope that I can actually just ramp up my physical stuff so I don't have to drop right down. I miss the nice dietician/diabetic/thyroid nurse at the surgery but her role was axed and that was that and I was left on my own and I think I am mostly managing it and hey she was there when I really really needed the help with this stuff.

Al has always verged on the underweight end of the spectrum and consumes so so so much food :/ so he just can't get his head around it sometimes.

And also we've had to shift my diet to be more protein, I now recognise when I am protein hungry. This was not compatible with his vegi cooking 🙁 We are sure there are ways of doing it but we can't seem to find it (bare in mind I can't have too much soya and no gluten and they were my main protein before).

If you have suggestions for high protein that's not fish then bung below 🙂 And yeah it is mainly fish I crave, I ate lots and lots of fish during my pregnacies as well - so I have a cupboard full of tuna to try and deal with this. But for joint meals it makes things a bit carni smelly for him which isn't really fair.

My birthday is on Wednesday - I'll spend it at the hospital having cognative stuff done and then it is Scouts night so half my family will disappear. I'm doing a krav one off workshop thing at the weekend which I'm kind of wondering why I agreed to it - I mean I'm just going to flab everywhere and trip over my own feet!

Planking... so I was letting Al do the timings and so I know I can go over a minute but I do not want to do that at the mo. Jan is about doing the minute planks due to c-section scar still complaining. Current pattern is 2 days of 1 min planks and then a couple of days off other wise the scar goes "oi!!!" and then I can't even do my kind of pull up things.

I trying to keep in my head how far I have come, how I origonally could not reach the pull up bar, how I can now wear heels instead of stooping over a walking stick....

Still no idea how I am actually going to celebrate my birthday, the kids are both adimant that I must but what with the krav thing and what not I'm kind of running out of dates to do stuff on!

And lastly - I miss cheap pizza and crusty white bread especially when the two collided. Sigh.