The Chronically Ill and Missing Stuff (by sarah)

As anybody who has spoken to me recently will know I was looking forward to this weekend, I had the night of dangerous writing which to be fair was only a maybe as I needed to see when my practice sessions and stuff where, and the Writing Retreat.

But this week had been a bit rough but I thought I was managing it ok, and I had already had to do damage limitation and not go to my Chuffing It class. Friday I felt a bit odd but in a way that could have been nerves over doing a new show for the first time a school and the first time on my own too!

I really enjoyed the shows and the kids were great but in the car on the way home I got really sick, well not really sick but suddenly very flu-like very chronic pain flare, even my pelvis hurt. I was scrubbed out and didn't make it to Bristol. Then I spent today napping and having warm baths and stuff.

Then this evening I find that due to being out of it yesterday afternoon and evening and really and truly this morning - I'd missed the writing retreat which I was desperately trying to be well enough to go to.... tomorrow - yeah somehow I managed to get my days confused and I only found out after getting an email saying how unfair it was of me not to turn up as there was a waiting list.

This is something that happens to chronically ill people no matter how much you try, regardless of how much you make sure that you pay for things you do not go on etc... people just do not understand and one of the things that was hard to learn on the pain management course 10 odd years ago - is that you can't really expect them too either.

From their point of view you are just being awkward.

It doesn't help that now I have a extra food issues and they had gone to extra effort to cater for that.

Of course if I had known I wasn't going, I would have let them know but I didn't and I am uber hacked off that I missed it - not that I could have gone even if I had been with it enough to realise what the day was!

It's the same mechanism by which the chronically ill lose friends as people think the last minute cancellations are excuses for "I don't like you".

And annoyingly it may be flu but equally due to the arthritis symptoms resurfacing we looked at the breakfast I'd been eating this week. It turns out that some porridge contains a thing called spelt - this turns out to be a kind of wheat - it never occurred to me it would be it oat based stuff and I was only having it as the nurse had increased my calories and it's frosty icing mornings :/

The Warrior Butterfly (by sarah)

Tonight (21 st Nov 2014) I am going to be taking part in a Quiet Compare event at The Strand in Cheltenham. It is medical themed poetry so I am taking along a poem I have only ever performed twice before and never to a live audience that is sitting there just for poetry.

The poem is The Warrior Butterfly and chronicles the issues I had around the pregnancy and birth of Jean, I could write a lot on the imagery and what the poem means to me but I shall not. The two previous performances were: 1) Cheltenham Community Radio for one of their shows and 2) for the On Form Sculpture exhibition in Oxford a few years ago where I stood on an Earth work (made for the garden not an ancient burial site) that was covered in flowers and called it to the sky and the arty loving people who happened to be wandering about at the time.

It is a long and in many ways personally indulgent poem for me, not my normal but as such it is often not the right sort of thing to read at events and the actual reading of it is hard for me.

I hope local peeps might like to come out tonight to listen - it isn't just me performing a 4 and a half minute poem, there are lots of others performing too, some of whom you might even have heard of!

Anyway I'd better give it the read through a couple of times before tonight.

Here's the event details for those of you not on Facebook it is 7:30 at The Strand in Cheltenham with a £1/£2 suggested donation on the door.

The Dyslexic Author (by sarah)

This week is Dyslexia Awareness Week, it is also the begininng of an insane writing challenge called NaNoWriMo which stands for National Novel Writing Month. The idea is that you write a minimum of fifty thousand words in a month and I have been doing this challenge and a picture book sister challenge called PiBoIdMo (Picture Book Idea Month) since 2009, which is now scary long ago.

When I first started the challenge and using the forum I felt very edgy, being severely dyslexic made me hesitate to enter into online written discussions with grammarian monsters - the sort that correct friends' emails. How was I ever going to compare to such writing experts when sometimes I can't spell mine or my kids' names correctly?

Trying to belt out a novel is an amazing experience but it is also an emotionally fraught one, especially for those low on self confidence. Self confidence is a key to success - it is not the only key but it is one of the main three - Self Confidence, Endurance and Improvisation/Adaptability. Dyslexics, due to our education system and social attitudes, tend to be high on intelligence and low on that whole confidence thing. To keep going with the writing you kind of need to believe that your story is good enough, that your imagination is fantastic and that everyone is going to want to read it. Many authors go through a cycle of thinking their stuff is amazing and will win a nobel prize, to sinking into a pit of despair over how rubbish it is.

But dyslexics have an added edge of nerves, an extra question over their abilities. Not only is there the language structure issues but there is the widely held idea that if you cannot spell you cannot write. This is wrong.

And it turned out that the way NaNoWriMo works is fantastic for boosting dyslexic writers. It goes something like this - everyone is rushing to get down as many words as they can, you are encouraged to leave the typos as they are and just keep going, everyone has typos, inversions of letters, missed letter where they are just typing so fast. Normal people see these and correct them, the dyslexic brain may think that that is the correct spelling and at other times it will see it as wrong - but conversely it might see the correct spelling as wrong and correct it to something incorrect - DOH!

What this means though is that when you are sitting in a cafe or pub with a group of writers your red line squiggles are no longer an issue - everyone has them. Then there is the concept that you can edit a book with mistakes in, no matter how many mistakes there are, but if there is no book to begin with you cannot edit it into something. This frees you up to write.

One of the things I also found was that increasingly I was learning language intricacies and histories and that I could grab the grammar nazis by the proverbial and correct them if and when they started. Grammar is not a fixed thing - look at the history of writing and you find that Shakespeare couldn't spell his own name, that names themselves are pretty fluid, that grammar is just basically a mark up language to tell the reader when to breathe when talking out loud.

But can a dyslexic ever be a writer, be a published author, a journalist?

Yes, they can, and when they do they tend to be multi-genre writers, not brilliant for becoming a household name but good for writing how-to and last minute books, to be able to switch the brain from science to sports to craft, to be journalists (with patient editors!), to be non-specialist all round jacks of all trades. And, increasingly, this is becoming acceptable back in the realm of fiction, thanks to authors such as Neil Gaiman.

So where does that leave me? I have said repeatedly that I must be insane trying to be a writer whilst being very very badly dyslexic but, you know what, I wasn't - I find that being dyslexic helps with research for stories and articles, as I can't rely on words or even the grammar. I often have to use both plus the context, meaning that I can often pick up on the big or small picture, the hidden concepts and deeper meanings. It also stops me making stupid assumptions as I can't take the writing literally and if it doesn't seem right I am forced to ask, to check. For science writing this is extremely important.

Now before we go any further, dyslexia is not something I can really define; it is just a part of how my brain is wired so I will not say that my writing success is because of, nor in spite of, the dyslexia. It could have stopped me; it was a hurdle, and it has stopped many but mainly because they are told they can't do things because of it. Also, yes, I am contrary and stubborn so when people told me I could not, or that I would find stuff hard, I was determined to show them I could do it - especially when my intelligence itself was under attack.

But would my life achievements have been different without the dyslexia? I kind of think not, I just had to take a different path. And that path has been strange and winding and this last week I have found myself writing craft workshops, reading my kids poetry and stories to kids whilst dressed up in ridiculous outfits at various kid clubs, being asked to perform my page poetry at several events, asked to run writing days for adults and kids, getting sci-fi stories accepted, writing blog copy and presenting my project Cuddly Science which includes script writing and picture book writing and report writing and talk writing.

And that was just this week. This last month included articles on sci-fi/fantasy and science and crafts and gardening and grant applications, and this last year saw me become a member of the Poetry Society, British Science Fiction Association and the British Science Writers Association (and yes that does confuse me especially as there is also the British Hen Well-Fare Trust that we got the chickens from too!), I have been asked to present awards to school kids and I completed a Science Communication course - something I dismissed as a "can't" during my undergraduate degree, due to the dyslexic issues.

I now firmly place myself in the role of writer, of author and so do others. I am finally what I was told I could never be - a dyslexic author. It was not trial free and it is not yet over, it kind of will never be over and I'm ok with that.

Back to NaNoWriMo, I find myself actively encouraging dyslexics to write - to take part and I love wondering around the forums and Facebook pages and twitter seeing articles like this pop up and I love to be able to say to those who are worried, those who are struggling, don't give up, you can succeed at this. And that doesn't just go for writing, it goes for every aspect of career and life 😀

Cuddly Science at The British Science Festival (by sarah)

Photo thanks to Fiona Austen

The weekend saw me, Alaric and Jean at the British Science Festival in Birmingham. I was doing the most indepth version of Cuddly Science yet - everyone who knows me will no doubt now be sick of hearing about Cuddly Science but just incase here is the run down 🙂

I came up with an idea during my science communication course at UWE and have spent the last six months working on it, initially just as a piece of course work but I soon realised that this was the thing that would link together all my skill sets. It grew and adapted.

It is a set of puppets, larger than life versions of influential scientists, technologist, engineers, maths peeps and medical persons. Initially I focused on Ada - she was a natural choice as we have taken part in every single Ada Lovelace Day so far!

Ada went on a few trips out and about telling kids about programming computers and her own erratic childhood. But right from the beginning I knew this needed to be bigger, I have a list of puppets that need to be made.

I now have 5 puppets, I only actually had two proper shows prepared for the Science Festival as I'd planned to repeat one of them. But people decided that they were going to keep coming back to my next show so I improvised the last show which was more about the experiments and science games we'd sorted out.

As mostly Cuddly Science is just me, each puppet has their own show with an activity of some sort for the kids to take part in. So Darwin told of how he wasn't very good at school or sitting still and about his discoveries and this led onto DNA (which wasn't about in his day!). We then did a little DNA extraction experiment with the kids which they loved.

Ada has a game that Alaric designed and I have done the graphics for, called Robo Bob's Jobs. We want to make a giant version of it as too our amazement there were way more than the 30 people we had designed our shows around and we need something seen from the back etc. The size of the crowed and the increase in business of the library during the day caused some issues with noise levels so I want to get a portable PA system as well. I need funding.

We also had some bits from Universe in a Box which the kids loved and was the stage for Brahmagupta, a 1500 yr old maths and astronomy dude. I generally entertained the kids between shows with the puppets and also during the activity sessions. We also had colouring sheets which I had drawn - manga scientists with room for the older kids to write down little factoids about the scientists etc...

I want to draw some more of these and maybe have a proper bundle for people to take away with them or down load from the web etc...

There were also science crayons for the colouring in - it was very popular and parents were desperate for their kids to have one of each of the pictures.

Those who could here the shows seemed to really enjoy them and I had so many people coming up to me to say how brilliant it was, how the children really responded to the puppets etc... I did get very nervous for the Ada show which was strange as I have done that one several times before. There were a lot of people there but not as many as for the last show which was improvised so should have been more nerve racking!

This is why I am off to do an improve comedy course at the end of the month - I am going to nail those nerves!

The appeal of the puppets was pretty universal and I got people who were just in the library and hoping for a story time - I equipped them with programmes for the rest of the festival and some of the kids would have played Al's game for hours and hours and had to be shoed away by Ada Puppet.

Ada was termed a princess by many and at least one parent turn round and said that they hadn't known girls could programme. I obviously thought about all of this when deciding what puppets to put in but was amazed to see impact straight away. Questions from adults and kids a like - mainly about Ada and Brahmagupta - it was the idea that people like "me" have done big science, tech, etc.... I really did not expect to see it so vividly.

I believe science is for everyone and this has been a big part of wanting to do science communication and the science art and it has made me more resolute and determined that Cuddly Science needs to get out there. It maybe one of my mad hat schemes, it may just be stupid puppets that me and my mum designed and games my husband made and a mish mash of my science education, experience running craft workshops, being in musical theatre, being an artist, poet and childrens instructor. It may have gotten it's inspirations from all over the place but Cuddly Science has the chance to make a difference, to help build a better world.

The library and festival volunteers were amazing at looking after us and a chain of people I know from various things came to see me which was very encouraging 🙂 Jeany loved it, especially when I let her set up the Story Steps at the library!

The library itself was pretty epic! And I loved the fact it was connected to the Theatre with poetry on the doors 🙂

I even bumped into a fellow poet just outside 🙂

And got to go to dinner with friends and meet their little one and stuff.

More photos of Birmingham:

Jean and Alaric found where they had been doing the custard walking 🙂

And so yeah - Cuddly Science is GO!

Science, Literature, Art and that is just the start (by sarah)

At the weekend I found myself in Birmingham using puppets I'd designed and my mother had made and drawings I'd done and a game Alaric had designed and I'd made and some basic DNA extraction with household chemicals... to teach very young children about science, or more over to show them what a fun and interesting world it can be.

It was over whelming and amazing and I need a PA system due to noise levels. I wished I could have stayed for the whole of the British Science Festival. I want to take Cuddly Science further - it was a project I created initially for my Science Communication course at UWE last year/this year - it needs to be so much more.

I am going to be spending this weekend at the Battersea Literature Festival, I will be reading a poem or two but mainly listening to some amazing poets who I admire very much. I have a list of things that need to happen to take the writing stuff further and I am excitedly awaiting the next writing challenge. There are box for the selling and I want to get out there and perform a bit more next year - I already have some bookings.

Art wise I have been pushing myself and submitting for stuff I really want to get but probably wont and that doesn't matter as it has helped me up my skill level allowing me to start producing manga style science colouring sheets for things like Cuddly Science... It's all looping around - all those different skills are interbreeding and producing... well stuff.

I still hope I get those projects.

The comic book is well into being created - it is sci-fi/fantasy and is part of what I call The Punks World. It will be lunched in Feb.

There are Christmas Presents to be knitted, preserved, painted, folded, harvested, papier mached and sewn before then. And Cheltenham Literature Festival where I will be doing fun writing games and activities and crafts with the kids.

This is all scarily starting to look like a career! There is more to come. At the weekend someone asked if I came from a Science or an Art background - I said Both. I was also asked what my career was and I was as always kind of stumped but they said that I'd reached the holy grail of "various" and yeah I think that is a pretty accurate description.

Art, science, craft, tech, singing, acting, improvising, working with kids, cooking, growing, explaining, knowing... all these things are becoming interconnected webs that I use to make workshops or books or a piece of art or to explain something in a way that will inspire or help. Sometimes it's hard to hold the shape of it all in my head at one time.

At the moment I tend to stuff like Artist and writer or the slightly longer... Artist, Writer, Science Communicator and Workshop Leader. I would love to say Creative but people think unemployed flake if you say that :/

Not really sure where any of this is gong but it's all exciting and should be interesting!