The Chronically Ill and Missing Stuff (by sarah)
As anybody who has spoken to me recently will know I was looking forward to this weekend, I had the night of dangerous writing which to be fair was only a maybe as I needed to see when my practice sessions and stuff where, and the Writing Retreat.
But this week had been a bit rough but I thought I was managing it ok, and I had already had to do damage limitation and not go to my Chuffing It class. Friday I felt a bit odd but in a way that could have been nerves over doing a new show for the first time a school and the first time on my own too!
I really enjoyed the shows and the kids were great but in the car on the way home I got really sick, well not really sick but suddenly very flu-like very chronic pain flare, even my pelvis hurt. I was scrubbed out and didn't make it to Bristol. Then I spent today napping and having warm baths and stuff.
Then this evening I find that due to being out of it yesterday afternoon and evening and really and truly this morning - I'd missed the writing retreat which I was desperately trying to be well enough to go to.... tomorrow - yeah somehow I managed to get my days confused and I only found out after getting an email saying how unfair it was of me not to turn up as there was a waiting list.
This is something that happens to chronically ill people no matter how much you try, regardless of how much you make sure that you pay for things you do not go on etc... people just do not understand and one of the things that was hard to learn on the pain management course 10 odd years ago - is that you can't really expect them too either.
From their point of view you are just being awkward.
It doesn't help that now I have a extra food issues and they had gone to extra effort to cater for that.
Of course if I had known I wasn't going, I would have let them know but I didn't and I am uber hacked off that I missed it - not that I could have gone even if I had been with it enough to realise what the day was!
It's the same mechanism by which the chronically ill lose friends as people think the last minute cancellations are excuses for "I don't like you".
And annoyingly it may be flu but equally due to the arthritis symptoms resurfacing we looked at the breakfast I'd been eating this week. It turns out that some porridge contains a thing called spelt - this turns out to be a kind of wheat - it never occurred to me it would be it oat based stuff and I was only having it as the nurse had increased my calories and it's frosty icing mornings :/
Sat 29th Nov 2014 8:47 pm 
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